!!! All the Support
Groups/Support Organisations and Burn Camps below (and
the up-to-date ones) can be viewed at www.burnsupportgroupsdatabase.com
(select 'Search Burn Organisations' or 'Burn Camps' from the left hand menu)
!!! All the Support
Groups/Support Organisations and Burn Camps below (and
the up-to-date ones) can be viewed at www.burnsupportgroupsdatabase.com
(select 'Search Burn Organisations' or 'Burn Camps' from the left hand menu)
Illinois
Parry-Romberg's Syndrome Support Group (International) |
The Parry-Romberg's Syndrome is a degenerative disease thats eats
away the tissues, muscles and bones of the face.
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| Burn Camp: Illinois Fire Safety Alliance Burn Camp |
Location: Ingleside, Illinois Affiliation:Illinois Fire Safety Alliance
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| Burn Camp: Illinois Fire Safety Alliance Burn Camp |
Location: Ingleside, Illinois Affiliation:Illinois Fire Safety Alliance
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Indiana
| Burn Support Group
in Fort Wayne |
Terry Mohler is a burn survivor who can appreciate the need to relate
to people with similiar experiences. His injury occurred July 1996, received
burns of 50% and is active in a burn support group at St. Joseph Hospital
in Fort Wayne, Indiana.
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| The People Burn Foundation of Indiana Inc | 323 N. Delaware Street The People’s Burn Foundation’s Mission is to provide support and advocacy services to burn survivors and their families and to educate our youth and communities on burn safety and prevention. If you or a loved one is victimized by fire, please contact the PBF for assistance resources to preserve the integrity of your family. The PBF has many programs that extend beyond the walls of the hospital to assist you. Imagine losing all of your worldly possessions to fire. That is why the Extinguish the Need for Victims of Fire program was started in 1999, to insure that families devastated by fire would haveevery chance to begin the rebuilding process with a gentle human touch. Prior to receiving services, families participate in a program that teaches fire prevention and safety, how to develop and practice a family fire escape plan, and burn safety measures in and around the home. Through donation drives, the ETN house affords families the opportunity to shop freely for household goods, clothing and small appliances. To accommodate an identified need of ongoing emotional support, the Foundation created The Brave Hearts’ Network, a series of events and programs throughout the year that provides several opportunities for burn survivors and family members to be involved in the community and network with one another.
Brave Hearts’ Camp is the highlight for the kids. A week long program during which counselors, professional firefighters, medical personnel, adult burn survivors and Foundation volunteers work with the children on self-esteem issues through a variety of activities. It is a psychological, rehabilitative recovery tool held exclusively for burned children in an environment of acceptance, compassion and fun.Brave Hearts’ Camp will be held July 30th through August 4, 2006 at Happy Hollow Children’s Camp in Nashville, IN. Burn survivors six to eighteen years of age, which have been hospitalized for a severe burn injury, are eligible to attend. Applications are available upon request. Since its formation in 1991, MC Axe and the Fire Crew with Special Guest Kasey the Life Saving Dog have taught fire safety and burn prevention to more than 2 million children throughout the Midwest. The group is comprised primarily of professional firefighters who utilize a wildly energetic blend of music, video and comedy to help children bond the Kasey and the Crew to learn fire and burn safety messages. In 2003, a team of Indianapolis painters suffered a traumatic fire. Local NBC television affiliate WTHR followed the painters’ burn injury recovery process over one year and produced an acclaimed documentary titled To Hell and Back. The Peoples Burn Foundation is proud to be the distributor of this educational documentary to every fire department in the United States. To Hell and Back and supporting educational and promotional materials will be distributed to assist state, regional, national and local organizations in addressing fire prevention and safety. Preventing burn injuries is a formidable part of the PBF’s mission. There is not better place to start prevention and safety efforts than with the firefighters who are exposed to the risk on a daily basis. Summer Ice is the Foundation’s annual black-tie fundraising event that serves as the primary resource of support for its operational expenses associated with PBF programs. The event allows PBF to host many local community leaders, corporations and organizations represented throughout Central Indiana who support the PBF mission and its programs. Corporate sponsorships are $2,000, which includes a table for ten, recognition
in the Summer Ice program and throughout the event on monitors in the
ballroom and recognition on the Foundation’s website. Prevention
sponsorships are $5,000 and include the same benefits as the corporate
in addition to name and logo recognition at all educational community
events and education materials produced during the year, including promotional
materials for PBF’s most popular program, MC Axe and the Fire Crew.
If you would like to: Please contact us at any of the above listed numbers or addresses. |
| Burn
Camp: Hoosier Burn Camp Inc. |
Contact:
Ginger Shanks (Executive Director) 338 Historic West 8th Street Anderson IN. USA 46016-1310 Telephone: 1-800-254-2878 The Hoosier Burn Camp Inc. is a non profit corporation endorsed by the Indiana fire and emergency services, through the Indiana Fire Services Institute. Hoosier Burn Camp was designed exclusively to provide a supportive summer camp experience for juvenile burn survivors, from the ages of 8 to 17 years old, at no cost to their families. The camp staff includes adult burn survivors, fire-fighters, burn care professionals and trained camp professionals. We are proud to have been mentored by the Illinois Fire Safety Alliance Burn Camp the first ACA accredited burn camp in the United States. The next camping opportunity for Hoosier juvenile burn victims will be May30 –June 4, 1999 at Camp Tecumseh, a fully accessible ACA accredited YMCA camp, located near Lafayette IN.
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Iowa
| Burn Camp: Miracle Burn Camp |
Location: East Lake, Okiboji, Iowa Affiliation: St. Lukes Medical Center, St. Forian Fire & Burn
Foundation, University of Iowa Burn Center
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Kansas
| Contact Scott |
......anybody out there who wants to talk to a burn survivor in Kansas?
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Louisiana
| Burn
Camp: Louisiana Burn Camp |
Location: Choudrant, LA Affiliation: Percy R. Johnson Burn Foundation, Recovering Burns
of Alabama
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Main
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FIRE inc. is informal and free of charge.
It doesn`t matter when you were burned. Please feel free to come and talk or just sit and listen. The group meets on the second Sunday of each month, at the Dana Education Center, Maine Medical Center, in Portland, Maine. The meeting is from 2-4PM in classroom #5. For more info contact:
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Maryland
| Burn Camp: Mid Atlantic Burn Camp |
Location: Harrisonburg, Virginia Affiliation: Baltimore Reg. Burn Ctr. Children's National Med.
Ctr. St. Christopher's Hospital, Crozer-Chester Med. Ctr. Lehigh Valley
Hospital, John Hopkins, Metro FF Burn Ctr. Fund, Aluminum Cans for Burned
Kids, PA Burn Foundation
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Massachusetts
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No Burn Support Groups/Burn Camps registered
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Michigan
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The Phoenix Society for Burn Survivor
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Headquarters:
2153 Wealthy SE, Ste 215 East Grand Rapids, MI 49506 Tel: (616) 458-2773 Fax: (616) 458-2831 (800) 888-2876 About Us For over 25 years, The Phoenix Society for Burn Survivors, Inc. has been connecting burn survivors, their loved ones, and burn care professionals with valuable resources. The Phoenix Society is a non-profit 501(c)(3) organization whose mission is to provide support to anyone affected by a burn injury through peer support, education, collaboration, and advocacy. Our programs and services provide burn survivors and those who care for them, a network of resources and opportunities for a happier, healthier, and more hopeful life. The Society was founded by Alan Breslau, who was extensively burned in the crash of a commercial airliner in 1963. Following a visit to a child at a local burn center, Alan realized the importance of peer support for those with burn injuries and went on to establish one for the first burn support organizations in the United States. The Phoenix Society takes its name from the legendary bird that lives 500 years and is consumed by flame, but rises again, reborn from its ashes, more brilliant than before. The Phoenix Society’s goal is to assure that all burn survivors have access to the support systems necessary for their recovery. The Society encourages and supports activities that bring survivors together to learn and grow from their common experiences. It provides emotional support and shares coping strategies with those affected by burn injuries and those who care for them. The Phoenix Society acts as an advocate for quality burn care and burn prevention at the National level. Most of the services offered by The Phoenix Society are focused on peer support and provide information and access to resources. Some of our key programs include: The Phoenix Society’s World Burn
Congress: SOAR: Burn Support News:
Web site: PEG: Toll Free Referral and Help Line:
Resource Library:
Advocacy:
Location: Walloon Lake, Michigan Contact: Susan Polan, Injury Prevention University of Michigan Health System, Trauma Burn Center Tel: (734) 615-1967
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| Burns United Support Groups, Inc (Detroit area!) | The Burns United Support Group
is open to anyone regardles the age group, no matter how small/large the
burn, hidden or otherwise.
Monthly meetings are held in the Detroit area and there are a lot of people to help out! The group can be contacted by telephone:
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| Burn
Camp: Great Lakes Burn Camp |
Location: Pretty Lake Vacation Camp in Kalamazoo County, Michigan Affiliation: Bronson Methodist Hospital, Blodgett Memorial Hospital,
Sparrow Burn Center , University of Michigan, V.F. Wade Burn Center, Michigan
State Firefighters Union, Prett Lake Vacation Camp
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| Burn Camp: Winters Camp |
Location: Michigan Affiliation: Bronson Methodist Hospital, Blodgett Memorial Hospital,
Sparrow Burn Center , University of Michigan, V.F. Wade Burn Center, Michigan
State Firefighters Union, Prett Lake Vacation Camp
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Burn Camp: |
Location: Camp Copneconic Affiliation: Detroit Receiving Hospital, Detroit Children's Hospital
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Minnesota
| Burn Camp: Ramsey Burn Camp Camp Courage North |
Location: Lake George, Minnesota Affiliation: Regions Hospital
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| Burn Center Support Group |
Regions Hospital Contact: Chris Gilyard, Burn Survivor Support Representative
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Mississippi
| Burn Camp: Mississippi Burn Camp |
Location: Vicksburg, Mississippi Affiliation: MS Fire Fighters Memorial Burn Center
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Missouri
| Burns Recovered Support Group (Missouri Children's Burn Camp) |
PO Box 410332 St. Louis Missouri 63141-0332 Hotline phone is: 314-981-0362 Linda & Gary founded Missouri Children's Burn Camp, which is for children 8-17 who were hospitalised for their burn injuries. It is free to any child who was hospitalised in the state of Missouri or presently is a resident. They are also able to accept other children as well.
The support group meets the 1st Thursday of the month at 6pm. Anyone interested in attending should call us at 314-981-0362 or e-mail us. Besides our monthly meetings we have quarterly "special events" such as a Holiday Party, Bowling Party & Spring Family Picnic. We are currently making preparations for a Family Workshop Day. We also have a Scholarship Fund available to burn survivors who reside in Missouri & are in need of financial assistance, do back-to-school reentry programs & have helped with registration fees to the World Burn Congress.
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Montana
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No Support Groups/Burn camp registered
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